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Imperial College Health Partner’s response to NHS Digital’s announcement to introduce and decision to defer a new national system for collecting data from GP services called General Practice Data for Planning and Research data collection, or GPDPR. We proudly host Discover-NOW, the health data research hub for real world evidence, and believe fundamentally in health...
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On Wednesday 26 May, the Discover-NOW team showcased their achievements over the last 18 months through a series of lightening talks from academia, healthcare and pharma. Attendees were given unique insights into their nationally endorsed approach to Public Patient Involvement and Engagement, including insights from a citizen representative who has helped to steer their public...
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Discover-NOW, Health Data Research Hub for Real World Evidence, have today successfully passed its second milestone recognising its significant impact on health data research in the UK. Through supporting access to one of the largest depersonalised linked health data sets in Europe within a Trusted Research Environment (TRE) led by Imperial College Health Partners, in...
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North West Londoners have set a clear recommendations for how they expect their data to be accessed as part of health research, with strong support for an independent data access group to review all research requests against a robust set of control criteria. Discover-NOW, Health Data Research Hub for Real World Evidence, one of the...
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John Norton, Citizen Partner on the Board of Discover-NOW, shares his reflections on Public Patient Involvement and Engagement. Having worked for a number of years in patient safety with Imperial College Health Partners (ICHP) I’ve seen the development of the North West London Health Research Register (I think I was number 9 to sign up!) and...
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Data collaborations are set to re-shape the way care for diseases like cardiovascular disease (CVD) are planned and personalised in the future.
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Amanda Lucas, Director of Information, in our latest blog, reflects on being part of Discover-NOW, Health Data Research Hub for Real World Evidence. As we head into 2021, it is important to take a moment to pause and reflect on the last extraordinary 12 months. At a time when health data has never been further...
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