North West Londoners have set a clear recommendations for how they expect their data to be accessed as part of health research, with strong support for an independent data access group to review all research requests against a robust set of control criteria. Discover-NOW, Health Data Research Hub for Real World Evidence, one of the...Read More
John Norton, Citizen Partner on the Board of Discover-NOW, shares his reflections on Public Patient Involvement and Engagement. Having worked for a number of years in patient safety with Imperial College Health Partners (ICHP) I’ve seen the development of the North West London Health Research Register (I think I was number 9 to sign up!) and...Read More
