13th June 2019 International interest in our research into the cost burden of undiagnosed rare diseases Following her presentation to the All Party Parliamentary Group on rare, genetic and undia... Read More Data Analysis and Insight
28th May 2019 A preliminary assessment of the potential impact of rare diseases on the NHS Read the full evaluation Date of publication: November 2018 Key points This project ... Read More Publications
20th December 2018 A ‘rare’ opportunity to influence national policy on access to medications Julia Wilkins, Head of Data and Analytics, recently presented her research on the impact o... Read More Uncategorised
17th December 2018 New report reveals that, while undiagnosed, rare disease patients have cost the NHS in excess of £3.4 billion New research, commissioned by healthtech company Mendelian and undertaken by Imperial Coll... Read More Uncategorised