The Covid-19 Data Prioritisation Group ensures appropriate research access to the North West London Covid-19 dataset to ensure clinical priorities are met as part of the sector-wide response to Covid-19. North West London as part of the sector-wide response to Covid-19, has created a Covid-19 specific De-identified data set which brings in data from Imperial College Healthcare NHS Trust and the region’s linked longitudinal data set. This new data set is hosted by WSIC and NIHR Imperial BRC in secure, high-performance environments.
To ensure that requests to access NWL’s Covid-19 De-identified linked data set can be reviewed in a timely manner and with the appropriate rigour and governance a COVID-19 NWL Data Prioritisation Group has been established.
This group will meet weekly to review both operational and research related requests to access the De-identified data for Covid-19 related issues. This new agile mechanism will ensure that the enriched data set can be used to answer Covid-19 operational questions and test research hypothesis in a timely way.
This review process compliments other work the Hub has been supporting in terms of expediting access to, and linkage of, priority data sets that has included near to real-time feeds from the NWL Pathology Labs, daily feeds from the five NWL Trusts at patient level in the form of the NHS England Sit rep report, Coordinate My Care flags, NHS Digital Shielded Population list and NHAIS population data.
The deadline for the COVID-19 NWL Data Prioritisation Group weekly meeting is 5pm every Wednesday. If your form has been completed appropriately you will be invited to present your project on the following Friday at 10-11am. If further details are required you will be contacted for these and you will be invited to present once the form has been satisfactorily completed.
Requests that are not Covid-19 related should follow the standard Research Access process that consider research applications on a monthly basis.
The processes to support the research are consistent with the sector’s processes articulated by the NWL Information Governance Committee and aligned to privacy and confidentiality laws. There will be no access to identifiable information, data will not be sold and there will be no forward transfer
The group comprises representatives from existing data access groups across NWL that represent the sector’s Data Controllers and Guardians.
Membership is as follows: